Ahh the Christmas festivities are in full swing and we are feeling the full effect of this Christmas season! We hope you are too!
We cannot say it enough! We are so so thankful for this time to be able to spend it together and at home! We have enjoyed family time (& will continue to) but when you know the clock is ticking you enjoy it in such a different way than when a ticking clock doesn’t exist! We had an awesome weekend baking with family and friends as well! We prepared tins of cookies and delivered them to neighbors that have turned into amazing friends! Those friends that have had our back throughout this journey and we honestly wouldn’t be able to do it without their support! There are so many great, kind and generous people that are also praying for Livy and our whole family and those prayers are working! There’s a reason Alivia is healthy. There’s a reason we get to spend Christmas at home. There’s a reason Alivia has 10 matched donors. There’s a reason we have the opportunity to be able to take her to the best hospital in the country. There’s a reason for it all and we are adapting to the heartbreak and sadness that has filled our souls for the past 3 months and overcoming it! If we don’t adapt and overcome we won’t be able to give Alivia the strength she needs to fight this nasty disease! This doesn’t mean the hard days that await us won’t break us down! This means that we’ve made promises to ourselves that each and everyday no matter the obstacles that stand in our way, we will push through and stand strong for our Little Livy Rae! She deserves to be surrounded in strength, to feel it with each snuggle, squeeze and kiss we give her! & we will do just that! If we don’t adapt and overcome what life throws at us, what’s our purpose? So make sure to live, laugh and love each and everyday that you are blessed with & if you can’t find a reason do so, do it for Little Livy!
She’s doing great! She is mastering the skill of going from sitting up to down to her belly to get what she wants! I’ve said it before and I’ll say it again THIS GIRL is going to be a go getter, without a doubt! Her determination and strength is what gives us our strength to smile through through all the emotions we are dealing with! She makes it so easy to look at her, play with her and treat her like we would any other baby! That too gives us such a positive attitude as there’s no better way for her to go into all of this! She’s upbeat, smiley, giggly and just a happy little girl all around!
So for the past 7 years we’ve had the same Christmas traditions of going to my moms, spending the night, enjoying great food and good company. We’ve always done this as we didn’t want Meli to be all alone on Christmas morning, when she has my sisters she could share the experience with. So last year we decided that it would be our last year of doing this and that since Meli would be getting a sibling, we would change things up and have our own Christmas morning at our house and meet up with our family during the day or whatever worked out. This too is another reason we are so so grateful to be able to be home for Christmas! Meli’s got her magic key for Santa (we don’t have a chimney), reindeer food, Grinch dust & cookies for Santa ready to go and it’s only 11am!! We are so so excited for her and Livy to share this 1st Christmas of new traditions together!
Our list of to do’s looks a little like this:
With all of this in mind, regardless of where we go Livy will need to go through Chemo, then receive her bone marrow transplant and on to the road of recovery. We’ve been told to plan for 6-8 months of her being in-patient and that is if all goes as planned, which unfortunately we all know isn’t reality. There will be complications and hurdles she might not be able to tackle on the 1st try and with each complication time will be added onto her recovery! We have so many friends, and family that want to support us, but as of right now as we confirm a donor, decide where she will get the best care, there isn’t much we can do, but pray for continued good health, the best for her.
We have been blessed with friends that too have had their fair share of sickness and went through similar situations with their family, and realize the huge financial obligation this is going to be for us. There has been a go fund me page created along with bracelets ordered! Please know that we appreciate anything and everything from prayers, to lighting candles for Livy, to messages of encouragement, to helping with Meli so she doesn’t feel so sad, to being an ear for us to vent or shoulder to cry on, and anything else along with any amount of donation!
Go Fund Me Page
I will continue to update this blog day by day throughout her treatment as I will need an outlet and will want to keep everyone updated with how she’s adapting and overcoming HLH like a BOSS BABY!
WE WISH YOU ALL A VERY MERRY CHRISTMAS & A HAPPY NEW YEAR FULL OF BLESSINGS, GOOD HEALTH & MEMORIES THAT WILL LAST A LIFETIME!
Take care, sending big bear hugs to you all!
CeeCee
We cannot say it enough! We are so so thankful for this time to be able to spend it together and at home! We have enjoyed family time (& will continue to) but when you know the clock is ticking you enjoy it in such a different way than when a ticking clock doesn’t exist! We had an awesome weekend baking with family and friends as well! We prepared tins of cookies and delivered them to neighbors that have turned into amazing friends! Those friends that have had our back throughout this journey and we honestly wouldn’t be able to do it without their support! There are so many great, kind and generous people that are also praying for Livy and our whole family and those prayers are working! There’s a reason Alivia is healthy. There’s a reason we get to spend Christmas at home. There’s a reason Alivia has 10 matched donors. There’s a reason we have the opportunity to be able to take her to the best hospital in the country. There’s a reason for it all and we are adapting to the heartbreak and sadness that has filled our souls for the past 3 months and overcoming it! If we don’t adapt and overcome we won’t be able to give Alivia the strength she needs to fight this nasty disease! This doesn’t mean the hard days that await us won’t break us down! This means that we’ve made promises to ourselves that each and everyday no matter the obstacles that stand in our way, we will push through and stand strong for our Little Livy Rae! She deserves to be surrounded in strength, to feel it with each snuggle, squeeze and kiss we give her! & we will do just that! If we don’t adapt and overcome what life throws at us, what’s our purpose? So make sure to live, laugh and love each and everyday that you are blessed with & if you can’t find a reason do so, do it for Little Livy!
She’s doing great! She is mastering the skill of going from sitting up to down to her belly to get what she wants! I’ve said it before and I’ll say it again THIS GIRL is going to be a go getter, without a doubt! Her determination and strength is what gives us our strength to smile through through all the emotions we are dealing with! She makes it so easy to look at her, play with her and treat her like we would any other baby! That too gives us such a positive attitude as there’s no better way for her to go into all of this! She’s upbeat, smiley, giggly and just a happy little girl all around!
So for the past 7 years we’ve had the same Christmas traditions of going to my moms, spending the night, enjoying great food and good company. We’ve always done this as we didn’t want Meli to be all alone on Christmas morning, when she has my sisters she could share the experience with. So last year we decided that it would be our last year of doing this and that since Meli would be getting a sibling, we would change things up and have our own Christmas morning at our house and meet up with our family during the day or whatever worked out. This too is another reason we are so so grateful to be able to be home for Christmas! Meli’s got her magic key for Santa (we don’t have a chimney), reindeer food, Grinch dust & cookies for Santa ready to go and it’s only 11am!! We are so so excited for her and Livy to share this 1st Christmas of new traditions together!
Our list of to do’s looks a little like this:
- Enjoy Christmas
- Snuggle/Watch Movies (at least 1) each day of Meli’s holiday break
- Have fun together all day everyday
- Ring in the new year with goals to tackle 2019 like lady bosses besides Oliver ..haha
- Visit Cincinnati Children’s Hospital
- Decide where Alivia will need to go for treatment
- & finally get a plan together of what the next few months looks like for our family
With all of this in mind, regardless of where we go Livy will need to go through Chemo, then receive her bone marrow transplant and on to the road of recovery. We’ve been told to plan for 6-8 months of her being in-patient and that is if all goes as planned, which unfortunately we all know isn’t reality. There will be complications and hurdles she might not be able to tackle on the 1st try and with each complication time will be added onto her recovery! We have so many friends, and family that want to support us, but as of right now as we confirm a donor, decide where she will get the best care, there isn’t much we can do, but pray for continued good health, the best for her.
We have been blessed with friends that too have had their fair share of sickness and went through similar situations with their family, and realize the huge financial obligation this is going to be for us. There has been a go fund me page created along with bracelets ordered! Please know that we appreciate anything and everything from prayers, to lighting candles for Livy, to messages of encouragement, to helping with Meli so she doesn’t feel so sad, to being an ear for us to vent or shoulder to cry on, and anything else along with any amount of donation!
Go Fund Me Page
I will continue to update this blog day by day throughout her treatment as I will need an outlet and will want to keep everyone updated with how she’s adapting and overcoming HLH like a BOSS BABY!
WE WISH YOU ALL A VERY MERRY CHRISTMAS & A HAPPY NEW YEAR FULL OF BLESSINGS, GOOD HEALTH & MEMORIES THAT WILL LAST A LIFETIME!
Take care, sending big bear hugs to you all!
CeeCee
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